26 People With Fibromyalgia Give Advice to Those Newly Diagnosed (look all)

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Fibromyalgia may affect an estimated 10 million people in the United States, but because of its complicated and varying symptoms, many doctors don’t even understand what it’s like. Can you imagine getting a diagnosis for something your own physician can’t even explain to you?

In addition to fatigue, pain and problems with cognitive functioning, the uncertainty for those just learning they have the chronic condition can be both isolating and frustrating. Thankfully, there are plenty of people out there willing to help, and the online communities for the chronic condition are incredible resources for support.

The Mighty teamed up with the National Fibromyalgia Association and Fibro Today‘s Fibromyalgia Awareness page to ask their Facebook communities to share advice to those newly diagnosed with the chronic condition.

Here are some of their responses:

1. “Don’t let anybody make you think it is all in your head.” —Tudy Ellis

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2. “Maintaining a positive attitude is tantamount to your health.” —Sonja Tapparo

3. “One day at a time.” —Karen Bond Hinson

 

4. “Don’t give up.” —Michelle Molhan Zang

5. “Educate yourself because many times you will end up knowing more than the doctors you go to!” —Lorraine Grecco

 

6. “Put you at the top of your to-do list.” —Debra Siddall-Montanez

7. “Don’t beat yourself up for not being able to accomplish what you could in the past.” —Sally Seneca

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